Hi....I am aged 34 and diagnosed with Crohns approximately 5 years ago....I've had a horrible time with Crohns over the past few years.....I took a bad reaction to azathioprine a few years ago resulting in a prolonged hospital admission and 6-9 months off work...then I was admitted with excruciating abdominal pains several times, eventually resulting in surgery to repair 5 structures in my ileum and partial small bowel resection in 2013....the strictures unfortunately recurred in April 2015 despite high Dose oral and intravenous steroids....
I had a further stricturoplasty operation a few months back but then developed life threatening complications resulting in emergency surgery a month later in August 2015....after 2 months of severe post operative pain, a paralytic ileus,Total Parenteral Feeding and Ng feeding I am eventually home but recovery remains slow. I now have an ileostomy and a healing abdominal wound.
My GI consultant wants to start Humira which I am quite apprehensive about as I really dont take well to meds generally and previous severe reaction to azathioprine. Steroids have now caused me to develop extensive avascular necrosis of both my hips and have been told that I need surgery in future to replace both my hips...I've been soo ill with Crohns that that's had to take priority.....
Any views welcome....especially about starting Humira..
Thanks
I had a further stricturoplasty operation a few months back but then developed life threatening complications resulting in emergency surgery a month later in August 2015....after 2 months of severe post operative pain, a paralytic ileus,Total Parenteral Feeding and Ng feeding I am eventually home but recovery remains slow. I now have an ileostomy and a healing abdominal wound.
My GI consultant wants to start Humira which I am quite apprehensive about as I really dont take well to meds generally and previous severe reaction to azathioprine. Steroids have now caused me to develop extensive avascular necrosis of both my hips and have been told that I need surgery in future to replace both my hips...I've been soo ill with Crohns that that's had to take priority.....
Any views welcome....especially about starting Humira..
Thanks