I've had 3 infusions and go for my 4th the beginning of February but I have my first follow up appointment with my GI today.
I know he is going to ask me how the treatment is working but I don't really know. I'm not sure what the expected results were supposed to be. I don't feel I have the disease as bad as some others, I don't have diarrhea every day or bleeding or the stomach pains all the time. I get occasional stomach cramps, a fair bit of gas and bloating, a lot of tummy gurgles and rumbles and I bounce between constipation and diarrhea...I don't know what "normal" is like anymore, if I ever did.
What should I be looking for in the terms of how effective the treatment is? I've altered my diet since starting treatment so how do I know if it's the diet or if it's the meds? I certainly have worse days than others where all food just doesn't sit right but I'm not always running to the bathroom, I might go once or twice and then things settle down to a medium discomfort level.
I know he is going to ask me how the treatment is working but I don't really know. I'm not sure what the expected results were supposed to be. I don't feel I have the disease as bad as some others, I don't have diarrhea every day or bleeding or the stomach pains all the time. I get occasional stomach cramps, a fair bit of gas and bloating, a lot of tummy gurgles and rumbles and I bounce between constipation and diarrhea...I don't know what "normal" is like anymore, if I ever did.
What should I be looking for in the terms of how effective the treatment is? I've altered my diet since starting treatment so how do I know if it's the diet or if it's the meds? I certainly have worse days than others where all food just doesn't sit right but I'm not always running to the bathroom, I might go once or twice and then things settle down to a medium discomfort level.