Crohn's Disease Forum » Extra Intestinal Manifestations » My List of Symptoms-(not intestinal)

02-16-2016, 06:10 PM   #1
amyh's Avatar
Join Date: Jun 2012
Location: Eugene, Oregon

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My List of Symptoms-(not intestinal)

Here are a list of all my symptoms that are not intestinal related, just in case anyone else has had weird symptoms and can relate:

Swollen tear ducts
Rib pain (feels like a bruise)
Hot spots on skin
Swollen gums
Arthritis that moves joints about every 3 days
Migraines: Including a Complex migraine that acted like a stroke and optical migraines.
Anxiety: Panic attacks and depression
Heart palpitations
lump in the throat feeling -lasted a few hours

All of these symptoms came and went, one at a time, seems like each symptom lasted about 3 months or so and faded away. The anxiety comes and goes. I'm currently on heart palpitations.

The things I find that help the most are Turmeric supplements, magnesium supplements and probiotics. If I keep up on the supplements, the symptoms are minimal to none. Im not on any other medication. currently, my intestines have been in normal operation. Tai Chi and my hot tub have also helped.
Diagnosed with Crohn's June 2012
Mother of 2, Bonsai artist, oil painter
Search and Rescue K9 handler
Graphic Designer
immune to Remicade
currently in remission
02-16-2016, 11:23 PM   #2
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Join Date: Dec 2014

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Hi amyh,

I have weird extra intestinal symptoms too. When I eat something that I react to I get systemic reactions that tend to go through all the body systems. Like weird head pressure, almost like sinus issues, palpitations, low blood pressure, panic attacks and random joint pains. I feel like garbage for a couple of months until the inflammation clears my body. I have determined that I don't do well with fructose and artificial sweeteners. I have had a bad reaction after honey and sorbitol. I will get diarrhea with not a lot of blood, but blood then get all of these reactions for a couple of months. Since I was diagnosed with crohns 2 years ago, I have felt I had food intolerance issues, otherwise I feel fine. I am currently on no medications just on a few supplements. Eating a very clean diet and biding my time till I need to go on the big gun meds. I wish you well and hope you find a way to cope with all of this too! Take care😊
03-09-2016, 10:52 PM   #3
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ronroush7's Avatar
Join Date: Oct 2013
Location: vienna, Virginia

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I have anxiety and psorasis and depression.
03-27-2016, 08:09 PM   #4
leloupaccroupi's Avatar
Join Date: Mar 2016
Location: Calgary, Alberta

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Does anyone else's anxiety seem sporadic or randomly triggered if both otherwise but sudden increases in stress or high environmental temperatures?
Diagnosed Severely active CD April 28 2016

Addison's since 2003
Failed Imuran: Acute Pancreatitis
Awaiting First Remicade Dosage

Amnium Vincit Omnia;
The Mind Conquers All
03-28-2016, 12:01 AM   #5
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tots's Avatar
Join Date: Feb 2012
Location: Austin, Texas

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Right there with the swollen gums, arthritis that moves joints ( a few of my fingers are now deformed), migraines, anxiety and heart palpitations.

Just in case the cramping and diarrhea aren't enough!


Diagnosed= 1992 and again Feb 2012 Confirmed with
CT enterography May 2015 !!

Waiting for the ok from my Ins company to restart Remicade. Will also start Imuron to get into remission!
I know it's out there somewhere and I WILL find it!


Crohn's Disease Forum » Extra Intestinal Manifestations » My List of Symptoms-(not intestinal)
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