Hi everyone, I was diagnosed with both fistulating & perianal Crohn's disease a year & a half ago. I'm only 22 and have had to continuously put my life on hold & am now looking at the possibility of premature menopause because of the disease. I'd had symptoms since I was 18 but thought they were just stomach aches but 2 years later I woke up one day barely being able to walk. I spent months being misdiagnosed & put on antibiotics before I was finally diagnosed & feel like a bit of a test dummy. It's been pretty tough trying to explain it to people who just don't understand.
In the space of 6 months I ended up having to have 4 surgeries because I had an rectal abscess that was the size of a golf ball that continued to reform so I spent a lot of time bedridden & in a lot of pain. It's been a year since my fourth operation where they put a temporary drainage tube in & a seton. I have been on both Humira & Purinethol for a year but I am now looking at a possible fifth surgery. I guess I am just wondering if anyone else has had a similar experience or any helpful information? I'm beyond frustrated but have been told that there's nothing they can do, that it will just have to burn itself out one day. I don't want to have to keep having surgeries every few months & the Crohn's has caused a lot of other health issues.
In the space of 6 months I ended up having to have 4 surgeries because I had an rectal abscess that was the size of a golf ball that continued to reform so I spent a lot of time bedridden & in a lot of pain. It's been a year since my fourth operation where they put a temporary drainage tube in & a seton. I have been on both Humira & Purinethol for a year but I am now looking at a possible fifth surgery. I guess I am just wondering if anyone else has had a similar experience or any helpful information? I'm beyond frustrated but have been told that there's nothing they can do, that it will just have to burn itself out one day. I don't want to have to keep having surgeries every few months & the Crohn's has caused a lot of other health issues.
