06-20-2016, 12:03 PM   #1
Join Date: May 2014
Vision Issues.

Anyone experience vision Issues while on Humira? I have been experiencing dark spots and floaters recently and my eye doctors don't see anything wrong even after a barrage of tests. Optic Neuritis has been associated with Humira but everyone says my optic nerves look fine. My prescription has remained steady.

Anyone else experience this?
06-20-2016, 02:24 PM   #2
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ronroush7's Avatar
Join Date: Oct 2013
Location: vienna, Virginia

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I am on Humira myself. I have only seen black spots once. I hope you get answers soon.
06-20-2016, 05:25 PM   #3
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Join Date: Aug 2012
Location: Cheshire, England, United Kingdom

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I had optic neuritis (pre crohns diagnosis and was on no medications). The pain was more crippling than when I had a perforated bowel. Everything was white. I went to eye casualty and they diagnosed it straight away after putting something in my eye that made my pupil larger. Interestingly it was missed when I went to see an optician. Sounds unlikely to be ON if you have had the same tests I had in hospital. But I would be cautious as I have read humira can cause neurological issues. I don't think I am allowed to ever take humira due to my history with this random episode of ON

2nd Generation affected

Symptoms since 08/2006 (age 17)

Emergency open bowel resection after perforation in 12/2011 (age 22) (wrongly diagnosed as burst appendix ). Three years remission following this unmonitored

Perforating small bowel Crohn's Disease 01/2016 (terminal ileum, duodenum)
Coeliac disease (age 26)

50mg azathioprine (down from 75mg after my WBC dropped)
Gluten-free diet

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