Crohn's Disease Forum » Support Forum » Undiagnosed Club » The Doctors Have No Clue! Help!

12-01-2016, 09:08 PM   #1
Join Date: Dec 2016
The Doctors Have No Clue! Help!

The doctors are unsure what is wrong. I have a lot of abdominal pain, nausea, fatigue. I have had 2 colonoscopies two endoscopies. They found ulcers in my duodenum, unexplained because I do not take pain killers. But the first Colonoscopy was not complete. The second endoscopy the ulcers were gone. The second colonoscopy they found I have extra colon and found inflammation in my ileum. They took biopsy of the inflammation and ulcers both coming back negative. But my cal protection chemicals in my stool came back extremely high, with no explanation from the doctor. My doctor thinks my constipation is from the twisted colon, but even on high doses of stool softener, mirlax, and fiber making me pass stool, the abdominal pain is still here when I eat or apply pressure. HELP!
12-01-2016, 09:14 PM   #2
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ronroush7's Avatar
Join Date: Oct 2013
Location: vienna, Virginia

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Maybe you need a second opinion. I am sorry for what you are going through.

Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
12-01-2016, 09:31 PM   #3
Join Date: May 2016
Location: Seneca, South Carolina

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I agree with Ron. Get a second opinion! It took me 4 different doctors before I got a kind one that said something isn't right, let's do a pill camera. Please don't convince yourself you're ok and go without treatment though. That's the worst thing you can do. Keep fighting for your health.

Crohn's Disease Forum » Support Forum » Undiagnosed Club » The Doctors Have No Clue! Help!
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