Crohn's Disease Forum » General IBD Discussion » Remicade levels really low...

02-24-2017, 08:38 AM   #1
Brad P
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Join Date: Nov 2008
Location: Newfoundland and Labrador
Remicade levels really low...

Last summer I had a bad flare and it was decided I start Remicade. By the time I had my first treatment that fall, I was feeling pretty good again. Right after treatment 3 on Nov 30, my Crohn's started acting up again and hasn't improved. Before treatment #4 in late January, they took blood to test my levels. 7 is the maintenance level. I was 1.2 which is barely detectable. They also didn't find any antibodies in my system. So they are upping my next dose from 300ml to 500ml and that is mid-March.

I am really hoping this next dose works next time. Has anyone been down a similar road where after a few treatments Remicade wasn't working, saw their levels were really low and a higher dose made a difference?
CD since 1987 - yearly flares
Sept 2008 - Small Bowel Cancer -> Tumor removed Oct 1st, 2008 followed by aggressive chemo (FOLFOX) Dec - May, 2009. 11 treatments.
October 2009 - Back to work, life getting back to normal
March 8th, 2010 - off work due to Crohn's, scarred stricture.
May 19th, 2010 - Roux en Y duodenal bowel bypass surgery (gastrojejunostomy)
October 2010 - Fully recovered, back to work...again!
May-July 2016 - Bad Crohn's flareup (apparently)
02-24-2017, 04:29 PM   #2
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I don't think I have had that problem. It took some tinkering to get mine at the right levels. I am somewhat concerned that my levels may be dropping now. I do also have to have my imuran examined as I just picked up some skin cancer. Joys. Hopefully a little tinkering will solve your issue for you.
02-24-2017, 04:30 PM   #3
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That did not happen with me but I hope the higher dose works for you. Besides this section, there is a section called Treatment and underneath that is a subsection called Remicade. You might try posting there also.

Crohn's Disease Forum » General IBD Discussion » Remicade levels really low...
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