Hi all, I'm Kika, a Portuguese teenager living with Crohns and I've been diagnosed for 1 year and an half.
My current medication is one Azafalk pill a day and will soon start Remicade due to unexpected complications.
I'm extremely open about my disease, considering I had a really bad time because of it and want to share some light with those who don't know about it.
I had a really bad diagnosis. My first hospital stay was horrible and inconclusive. Besides having needles all over my hand, I wasn't allowed to eat for days and kept dehydrating because of the regular "toilet breaks". The second one was better but food was still a problem, and still is.
I got extremely traumatized but refused psychological help at the time, ending up hiding away from everyone. This affected my reputation at school and social life a lot, but to be honest, I don't regret it because I had time to think better about my life path and decisions.
I quit school due to health complications and will change majors ( going from Humanities and Social Studies to Performing Arts ) and am currently helping some friends with mutual personal projects.
Something I want to talk about here, and see if someone might have gone through the same, is the "complications" I have had ever since I was diagnosed...
- My hands shake a lot, and when I mean a lot I'm basically saying ALL THE TIME. It's really annoying - I can't write properly, I can't hold things without creating an "handquake" like my brother calls it and it also makes people give nasty stares.
- I also have memory shortage and I can't remember things that happened in the morning or the day prior.
- I have fevers during the night and my breathing became irregular and I basically fall asleep everywhere ( even sitting on a sink ). Also, pimples. Oh those nasty bastards keep appearing all over my face.
- Hair growth became slower. Blood pressure became even lower and oh the breathing problems and weak immune system. "You're basically a baby again" they said. Also, my weight goes away really quickly but never comes back.
Can you help a newbie out here relieve some of her fears? Much appreaciated.
Now I will talk about some things I like just to make this happier...
- Volunteering. I love helping others.
- Everything related to arts: music, painting, acting, dancing, etc.
- Comic books and TV Shows, especially crime based and comedy ones.
- I actually enjoy home decor, blame The Sims.
- Video Games, especially The Sims series.
- Sleep, important and useful.
- Purple. I love purple. Don't even get me started on that, I could talk for ages.
Regarding the title of this post, well, I'm 150cm and I consider myself to be extremely strong emotionally.
I hope we can help each others with our journeys and find a cure for all these nasty problems that make us sick and sad.
My current medication is one Azafalk pill a day and will soon start Remicade due to unexpected complications.
I'm extremely open about my disease, considering I had a really bad time because of it and want to share some light with those who don't know about it.
I had a really bad diagnosis. My first hospital stay was horrible and inconclusive. Besides having needles all over my hand, I wasn't allowed to eat for days and kept dehydrating because of the regular "toilet breaks". The second one was better but food was still a problem, and still is.
I got extremely traumatized but refused psychological help at the time, ending up hiding away from everyone. This affected my reputation at school and social life a lot, but to be honest, I don't regret it because I had time to think better about my life path and decisions.
I quit school due to health complications and will change majors ( going from Humanities and Social Studies to Performing Arts ) and am currently helping some friends with mutual personal projects.
Something I want to talk about here, and see if someone might have gone through the same, is the "complications" I have had ever since I was diagnosed...
- My hands shake a lot, and when I mean a lot I'm basically saying ALL THE TIME. It's really annoying - I can't write properly, I can't hold things without creating an "handquake" like my brother calls it and it also makes people give nasty stares.
- I also have memory shortage and I can't remember things that happened in the morning or the day prior.
- I have fevers during the night and my breathing became irregular and I basically fall asleep everywhere ( even sitting on a sink ). Also, pimples. Oh those nasty bastards keep appearing all over my face.
- Hair growth became slower. Blood pressure became even lower and oh the breathing problems and weak immune system. "You're basically a baby again" they said. Also, my weight goes away really quickly but never comes back.
Can you help a newbie out here relieve some of her fears? Much appreaciated.
Now I will talk about some things I like just to make this happier...
- Volunteering. I love helping others.
- Everything related to arts: music, painting, acting, dancing, etc.
- Comic books and TV Shows, especially crime based and comedy ones.
- I actually enjoy home decor, blame The Sims.
- Video Games, especially The Sims series.
- Sleep, important and useful.
- Purple. I love purple. Don't even get me started on that, I could talk for ages.
Regarding the title of this post, well, I'm 150cm and I consider myself to be extremely strong emotionally.
I hope we can help each others with our journeys and find a cure for all these nasty problems that make us sick and sad.