Crohn's Disease Forum » Your Story » 30 years of Crohn's


05-05-2017, 05:11 PM   #1
Daddytall
 
Join Date: May 2017
Location: Boulder, Colorado
30 years of Crohn's

30 years of Crohn's and just got out of another week stay at Club Medical with another bowel ubsrustion. Trying to avoid a 3rd surgery, although it's been 12 years since the last one. Joined the forum to see what the latest is. Currently sitting at the infusion center getting round 1 of entivio. Remicade lost its effectiveness years ago.
05-06-2017, 10:21 PM   #2
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Hi. Has your doctor tried sny of thr other biologics like Stelara,Cimzia, Humira,
Entyvio or Simponi?
05-07-2017, 12:31 AM   #3
warrior2
 
Join Date: Oct 2016

My Support Groups:
we veterans of this illness are out here. problem is the long journey dealing with this illness takes a toll on you. the meds side effects are as toxic as the disease. have u considered complete removal of the bowel? Im not a fan of this option, but one day down this long road u may be faced with the decision. like myself.
__________________
colitis in early 20's, 1980
crohns current 2016
remicade 5/16 @ 8 weeks
prednisone throughout life.
failed meds: asecol, flagyl
blood clots 5/16 IVF
P.E. 5/16
Glucoma 2014
esopheguael strictor
complete hearing loss1987
2016, xmas eve. ostomy, complete colon removal
05-07-2017, 05:54 PM   #4
Daddytall
 
Join Date: May 2017
Location: Boulder, Colorado
we veterans of this illness are out here. problem is the long journey dealing with this illness takes a toll on you. the meds side effects are as toxic as the disease. have u considered complete removal of the bowel? Im not a fan of this option, but one day down this long road u may be faced with the decision. like myself.

Thanks guys. I started Entyvio 3 days ago and walked out of the infusion center and straight to the ER with another small bowel ubstruction. Currently inpatient with iv steroids.
05-07-2017, 06:03 PM   #5
warrior2
 
Join Date: Oct 2016

My Support Groups:
oooohh that sucks. good luck. hope u got people to support u while in hospital. hang in there.
05-07-2017, 06:07 PM   #6
Daddytall
 
Join Date: May 2017
Location: Boulder, Colorado
I'm good, loving wife and all that nonsense 5 miles amay.
05-07-2017, 06:18 PM   #7
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
I hope you recover soon. Prayers.
05-24-2017, 06:13 PM   #8
Daddytall
 
Join Date: May 2017
Location: Boulder, Colorado
Well I made it out after 3 weeks inpatient :rollseyes:
40mg of prednisone and try to get the entivio to work.
Still inflamed, still unsure if there is scarring or a constricter that has to come out. I'm laying on the couch with a 112 pulse.

I'm home and I feel better everyday.
Reply

Crohn's Disease Forum » Your Story » 30 years of Crohn's
Thread Tools


All times are GMT -5. The time now is 02:47 PM.
Copyright 2006-2017 Crohnsforum.com