05-24-2017, 04:17 PM   #1
Holding It Together
CarolinAlaska's Avatar
Join Date: Jan 2013
Location: North Central, Illinois

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Low White Count

Jae had blood work in the ER last Wednesday and her white count was 1.3. The next day it was 1.7. I think it was suppressed from a virus she had been fighting. She was then in the hospital (not GI related) and it was never checked again. The hospitalist who discharged her said that she should recheck it in a couple weeks and not restart the 6 MP until then. She is now a week without 6 MP. What consequences will we have if she doesn't take it for 2 weeks? I cannot get anyone to answer the phone for the past week at GI, and still waiting for a call back from rheumatology from today. I'm concerned. Should I be?
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), intermittent NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
05-24-2017, 04:53 PM   #2
my little penguin
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Join Date: Apr 2012

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Ds had lots of GI symptoms after a week off 6-months
But it wasn't really keeping him stable at the time so that may be why

Hope GI calls back soon
DS - -Crohn's -Stelara -mtx
05-24-2017, 05:03 PM   #3
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Maya142's Avatar
Honestly, I think it's a question for your GI. Is there any way you can get in touch with him/her? Email if they won't answer the phone?

How is J doing, besides the low WBC?
Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
05-26-2017, 04:44 PM   #4
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kimmidwife's Avatar
That is terrible. We are also waiting all week for a call back. It is very frustrating.

Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
05-30-2017, 10:11 PM   #5
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Optimistic's Avatar
Join Date: Oct 2014

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How is she?

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