After years of failing to get closure (medically and surgically) for recurring fistulas, I am exploring additional medical and surgical options.
I currently have a temporary ileostomy and don't want to give up and go to a permanent proctectomy and colostomy (but realize that may be the end game), but I also have learned a little more about the Turnbull-Cutait procedure through a second opinion at Johns Hopkins. I understand Cleveland Clinic does most of them but that I may not be the ideal candidate. So...
1. Has anyone here (especially with the fistulizing form of our disease) have experience going from an ileo to a permanent proctectomy/colostomy? Thoughts on quality of life before/after?
2. Has anyone (realize probably not) had the Turbull-Cutait procedure or at least considered it? What are you experiences/thoughts?
Thanks in advance for your sharing!
I currently have a temporary ileostomy and don't want to give up and go to a permanent proctectomy and colostomy (but realize that may be the end game), but I also have learned a little more about the Turnbull-Cutait procedure through a second opinion at Johns Hopkins. I understand Cleveland Clinic does most of them but that I may not be the ideal candidate. So...
1. Has anyone here (especially with the fistulizing form of our disease) have experience going from an ileo to a permanent proctectomy/colostomy? Thoughts on quality of life before/after?
2. Has anyone (realize probably not) had the Turbull-Cutait procedure or at least considered it? What are you experiences/thoughts?
Thanks in advance for your sharing!