Crohn's Disease Forum » Surgery » Ileo -> Proctectomy/Colostomy or Turnbull-Cutait Procedure...Anyone Have Experience?


09-10-2017, 08:30 AM   #1
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Ileo -> Proctectomy/Colostomy or Turnbull-Cutait Procedure...Anyone Have Experience?

After years of failing to get closure (medically and surgically) for recurring fistulas, I am exploring additional medical and surgical options.

I currently have a temporary ileostomy and don't want to give up and go to a permanent proctectomy and colostomy (but realize that may be the end game), but I also have learned a little more about the Turnbull-Cutait procedure through a second opinion at Johns Hopkins. I understand Cleveland Clinic does most of them but that I may not be the ideal candidate. So...

1. Has anyone here (especially with the fistulizing form of our disease) have experience going from an ileo to a permanent proctectomy/colostomy? Thoughts on quality of life before/after?

2. Has anyone (realize probably not) had the Turbull-Cutait procedure or at least considered it? What are you experiences/thoughts?

Thanks in advance for your sharing!
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Diagnosed with Crohn's: 2002
Past Meds: Pentasa, Remicade, Cimzia, Asacol, Cipro, Flagyl, Lialda, Humira
Current Meds: Stelara, Azathioprine (150mg/day)

Surgeries: Fistulotomies & Seton Placements (9/2011, 1/2013 & 8/2013); Advancement Flap (12/2013); Temp Loop Ileostomy (7/2016); Fistula Repair w/ Gracilis Muscle (9/2016); Fistula Repair (12/2016); Seton Placement & Stem Cell Harvesting (4/2018)
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Crohn's Disease Forum » Surgery » Ileo -> Proctectomy/Colostomy or Turnbull-Cutait Procedure...Anyone Have Experience?
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