Crohn's Disease Forum » Your Story » Introduction

10-19-2017, 05:38 AM   #1
Join Date: Oct 2017
Location: Pittsburgh, Pennsylvania


My name is Nadene, and I am new to the group, but not new to Crohn's disease. I was first diagnosed 19 years ago, with severe pain. I went to many doctors and nobody diagnosed me, I saw a gastro, and then a gynecologist. The gyno gave me a hysterectomy, but my pain still persisted, finally after much research, I had to tell my doctor what I had so that I could get a referral to a gastro. They thought my Crohn's had been in remission for many years, because there was no sign of it through a colonoscopy, but later CT scans revealed that it is down very low. So, to make a long story short, I am having surgery in November, for narrowing, structuring, and inflammation. I am on a low residue diet until then.

So, I am glad to be around people like me.
10-19-2017, 07:43 AM   #2
Forum Monitor
ronroush7's Avatar
Join Date: Oct 2013
Location: vienna, Virginia

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Welcome. Wish you the best. Keep us updated.
10-19-2017, 10:26 AM   #3
Senior Member
Join Date: May 2017

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Hi Nadene,
I think it's frequent to have silent stricturing disease when located in the small bowel.
I went through the same 5 years ago, with a strictureplasty surgery.
I wish you the best too.
10-19-2017, 03:34 PM   #4
Join Date: Oct 2017
Location: Pittsburgh, Pennsylvania
Thank you.
10-20-2017, 09:39 AM   #5
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scottsma's Avatar
Join Date: Jan 2012
Location: Tynemouth, United Kingdom

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Hello and welcome.I hope your surgery goes well and is of benefit to you.As you;ve been in remission for so long it must have come as a shock to you.Crohns does have a nasty habit of sneaking up on us ,but it's best to get your present problem sorted and you can begin to feel better.Please keep us updated as others will be going through the same as you and it will be helpful to them.Sending support.
10-23-2017, 06:35 AM   #6
valleysangel92's Avatar
Join Date: Dec 2012
Location: United Kingdom

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Hello, welcome to the forum

I'm sorry to hear you're going through a difficult time right now, but I'm so glad you've found us. We all know how difficult this process is and we understand the unique difficulties that come along with a chronic illness.

I hope your surgery goes well and you have a smooth recovery, if you have any questions or concerns, please don't be afraid to ask, there is always someone here who has been in your shoes. We don't have all the answers but we will always try to point you in the right direction and will do what we can to support you. There is no judgement here and there is no such thing as a silly question.

coeliac disease/Osteopenia /Crohns/Arthritis/
laperoscopic hemicolectomy 25/06/ 2013

Meds- Vedolizumab, pentasa, Lansoprazole, Vitamin D, prochlorperazine, Oramorph, MST, B12 shots My journey with crohns:

Allergic to - inflectra, aza

Non CD meds - Gabapentin, paracetamol, ventolin

Crohn's Disease Forum » Your Story » Introduction
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