Crohn's Disease Forum » Treatment » Remicade/Infliximab » How long did it take to know if Remicade was effective?


11-12-2017, 06:25 PM   #1
irongulch
 
Join Date: Sep 2017
How long did it take to know if Remicade was effective?

I've had my 3 loading doses and I do not feel better. I actually feel worse than when I was on Humira (which stopped working). I see my dr. on Tuesday so I'll ask him but am wondering, for those who it's worked for, how long before you saw improvement with Remicade?
11-12-2017, 10:58 PM   #2
ronroush7
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I hope you get answers soon.
11-13-2017, 06:15 PM   #3
irongulch
 
Join Date: Sep 2017
Thank you, me too.
11-13-2017, 06:21 PM   #4
Maya142
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The answer is it depends. Most people feel better after the first few infusions, but others take longer. You may need a higher dose or more frequent infusions.

My daughter took 3-4 infusions and needed both a higher dose of Remicade and more frequent infusions (every 4-5 weeks after loading doses) before she felt better.

There are some kids on the Parents' forum who have taken 6 months to feel better.

Sometimes adding something like Methotrexate can give Remicade a "boost" and that can help.

The good part about Remicade is that you have room to go up on the dose and can increase the frequency quite a bit.

Good luck!
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
11-13-2017, 07:00 PM   #5
irongulch
 
Join Date: Sep 2017
Thanks so much! I didn't know if I had given it enough time. I'm curious to see what my Dr. says when I see him tomorrow. Appreciate the response.
11-13-2017, 08:37 PM   #6
my little penguin
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Ds also felt horrid till about 7-8 weeks from the first infusion
And then needed a higher dose at a higher frequency to work
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11-13-2017, 08:38 PM   #7
irongulch
 
Join Date: Sep 2017
Thank you! I'm just about at the 8 week mark. Hopefully it kicks in soon. I'm just nervous with the holidays coming up--don't want to feel worse then.
12-31-2017, 09:56 AM   #8
SdN
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Hi Iron it took about 8 months or so before Remicade started working for me. I started at the 5mg/kg ratio every 8 weeks and had to progress to 7.5mg/kg before is started working. I've been symptom free for 6 years now. Good luck to you and I sincerely hope this drug gives you some relief.
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Diagnosed with Crohn's September 2009

50mg Imuran - Jun 2010
increased to 150mg Imuran - Jan 2011
5mg/kg Remicade every 8 weeks - Mar 2011
stopped Imuran - Aug 2011
7.5mg/kg Remicade every 8 weeks - Nov 2011
Remicade is still working - Nov 2014
Colonoscopy shows no Crohn's! - Dec 2014

Current meds - 7.5mg/kg Remicade
01-07-2018, 09:23 PM   #9
Jerade
 
Join Date: Jan 2018
Location: Saskatchewan
It took my remicade treatments to start working after about the fourth one
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