11-15-2017, 09:01 AM   #1
BasedJawline
 
Join Date: May 2013
Location: Victoria, Australia

My Support Groups:
Rifaximin

I finished a course of rifaximin a month ago and my symptoms completely disappeared. I have crohn's disease and was in a bit of a flare up - bit of blood in stools, sloppy/sticky unformed stools and bad indigestion. Also was taking humira which I've been on the last 8 years.

Anyway off it a month and now my indigestion is back (and quite bad - vomited yesterday).

Just wondering anyone on it long term?

Also, how does this not show, at least in my case, that the cause of my crohn's is bacterial related? Why can't they find an antibiotic to cure it then or prescribe fecal transplants more readily and easily?
11-15-2017, 10:54 AM   #2
Scipio
Senior Member
 
Scipio's Avatar
 
Join Date: Oct 2015
Location: San Diego

My Support Groups:
As you know, Rifaximin is an antibiotic. But the fact that it cleared up your symptoms does not necessarily indicate that the cause of your disease is bacterial. That might be the case, but it also might not because many antibiotics, including Rifaximin, also have a direct anti-inflammatory effect. So did your symptoms decrease because the drug killed off some harmful bacteria, or did they decrease because the drug knocked the inflammation down? Hard to say for sure.
11-15-2017, 11:10 AM   #3
BasedJawline
 
Join Date: May 2013
Location: Victoria, Australia

My Support Groups:
As you know, Rifaximin is an antibiotic. But the fact that it cleared up your symptoms does not necessarily indicate that the cause of your disease is bacterial. That might be the case, but it also might not because many antibiotics, including Rifaximin, also have a direct anti-inflammatory effect. So did your symptoms decrease because the drug killed off some harmful bacteria, or did they decrease because the drug knocked the inflammation down? Hard to say for sure.
Would you know the mechanism of an antibiotics potential mechanism as an anti-inflammatory? Wiping my gut bacteria (potential overgrowth) which can potentially be causing inflammation? Sounds more unlikely that it is indirectly wiping a bacteria causing my crohns in the first place tbh. I might be too zoned in that it is bacteria though and I'm not open to other ideas. Sick of the propaganda type bs that it is auto-immune with 0 actual evidence of that. Crohns is a joke to me (sorry for the mini-rant)
11-16-2017, 09:19 AM   #4
curlywurly
Hi basedjawline
I have been put on Rifaximin for the next two weeks due to small intestine bacterial overgrowth I have been told it has nothing to do with crohn's.
I have crohn's colitis & Hiatus Hernia I have recently been bloated with nausea and heartburn, maybe you have SIBO?
02-18-2018, 09:47 PM   #5
dzwilks
 
Join Date: Nov 2017
Location: Cleveland heights, Ohio
Hi basedjawline
I have been put on Rifaximin for the next two weeks due to small intestine bacterial overgrowth I have been told it has nothing to do with crohn's.
I have crohn's colitis & Hiatus Hernia I have recently been bloated with nausea and heartburn, maybe you have SIBO?
Hi basedJawline,
I have been on rifaximin for the past 16 years. I take 275 mg twice a day. I started Humira about 8 months ago. I also take lialda, curcumin, and cultured vsl3. I'm doing very well now. My last calprotectin was 23. Needless to say, I have no Crohn's symptoms. If you think that the rifaximin helped you, perhaps you could keep taking it. I'm convinced that since it is basically not absorbed, there are no side effects.
By the way, I give myself the 40 mg Humira shot every 3 weeks instead of the recommended 2 weeks, because Humira does have side effects.

02-18-2018, 10:39 PM   #6
BasedJawline
 
Join Date: May 2013
Location: Victoria, Australia

My Support Groups:
Hi basedjawline
I have been put on Rifaximin for the next two weeks due to small intestine bacterial overgrowth I have been told it has nothing to do with crohn's.
I have crohn's colitis & Hiatus Hernia I have recently been bloated with nausea and heartburn, maybe you have SIBO?
Hey mate nah I have a severely strictured duodenum (D2). My gastro said it was just a bacterial overrowth too and not crohns related lol. In the end they actually no nothing at all about this disease. just throwing different drugs at me and seeing which one sticks. done with gastroenterologists tbh.
02-18-2018, 10:44 PM   #7
BasedJawline
 
Join Date: May 2013
Location: Victoria, Australia

My Support Groups:
Hi basedJawline,
I have been on rifaximin for the past 16 years. I take 275 mg twice a day. I started Humira about 8 months ago. I also take lialda, curcumin, and cultured vsl3. I'm doing very well now. My last calprotectin was 23. Needless to say, I have no Crohn's symptoms. If you think that the rifaximin helped you, perhaps you could keep taking it. I'm convinced that since it is basically not absorbed, there are no side effects.
By the way, I give myself the 40 mg Humira shot every 3 weeks instead of the recommended 2 weeks, because Humira does have side effects.
I took mesalizine (lialda) for nearly 10 years too, I don't recon it did too much other than potentially fuck up my liver. Nice one with the curc though and the one specific strand of bacteria I have found helps is B infantis if you want to look into that one.

I've started a complete fruit cleanse (the last 6 weeks) and my symptoms have greatly improved (I can link you to the videos I've watched if this interests you). Avoiding surgery and avoiding going on methotrexate and changing to high dose infliximab and I'm pretty confident I can potentially cure my incurable 'disease' right now. I'm back to taking my humira every 3 weeks, I'll wait till my next scope and decide if I want to go off it and keep with the holistic medicine approach/lifestyle changes/living how I am supposed to.
02-19-2018, 10:17 AM   #8
dzwilks
 
Join Date: Nov 2017
Location: Cleveland heights, Ohio
Thanks so much for posting. It's nice to know that I'm not the only one on Humira every three weeks.

02-20-2018, 10:20 PM   #9
Lynda Lynda
Bee Keeper 🐝
 
Lynda Lynda's Avatar
 
Join Date: Feb 2018
Location: Arizona
Thanks for all of the information. The more I know the better I can communicate with my doctor. ♡
Reply

Thread Tools


All times are GMT -5. The time now is 03:03 AM.
Copyright 2006-2017 Crohnsforum.com