Crohn's Disease Forum » Treatment » Remicade/Infliximab » Home Remicade infusions- pros/cons/ your experience?


12-20-2017, 03:02 PM   #1
xmdmom
Senior Member
Home Remicade infusions- pros/cons/ your experience?

I am looking for your thoughts and experiences. Insurance has said they will not reauthorize his current site and I think they are pushing home infusions.
12-20-2017, 05:13 PM   #2
Maya142
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I will tag some parents whose college-age kids have had them - Jmrogers4 and crohnsinct.
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
12-20-2017, 07:30 PM   #3
crohnsinct
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Join Date: Mar 2012
Location: California

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O does home infusions and she loves it. I think the older kids really like that it disrupts their day less because lets face it they have better things to do with their time than take care of their health

There are home infusion providers who specialize in Remicade. As a matter of fact, O's provider only does Remicade and iron infusions.

It is way cheaper so helps with co-pays if that is a concern.

Customer service with our provider is usually excellent.

Also, once you are set up with a home provider they can do infusions anywhere, so if you go on vacation to another town they can send a local nurse there to do it.

Con - they don't typically draw for lab work so they have to drag out to a lab and have that done. But even with that O says it is MUCH more convenient.

Con - nurse flaked once on O and didn't show up the day of infusion. Luckily she didn't take the Remicade out of the fridge. If she had it might have been ruined and they would pay for it and fed ex her another vial but she was getting on a plane the day after and it could have been a real pain.
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Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Remicade
Vit d 2000IU
Multi vitamin plus iron
Calcium

Previously used - Prednisone, Prevacid, Enteral Nutrition, Methotrexate oral and injections, Folic Acid, Probiotics, Cortofoam

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohn's
Remicade
Vit D 2000IU

Previously used, Exclusive Enteral Nutrition, Methotrexate (injections and oral), Folic Acid, Entocort,IBD-AID Diet
12-21-2017, 01:15 PM   #4
Jmrogers4
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Pretty much ditto what CIC says, it is much more convenient. He was able to schedule around finals. He also did not take a car to college so it's really nice having them come to him. Also makes sure he stays on schedule since they call him a couple of days beforehand to schedule a time.

His last infusion just before he came home for break they messed up on his meds and didn't ship the steroids, they ended up overnighting and it was delayed from 3:30 one day to 8:30 the following morning. Could have been taken care of right away had he checked what was in the box when he got the delivery but lesson learned.

Yes, labs are a pain, luckily they have a lab on campus since it's a medical oriented college he is attending but then we had to go have labs done when he was on Imuran.
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
12-21-2017, 01:22 PM   #5
xmdmom
Senior Member
@jmrogers
Are the nurses infusion nurses or just nurses in a home health agency?
12-21-2017, 01:31 PM   #6
Jmrogers4
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It's a home health agency but it is an infusion nurse they send out and at least with my kiddo it's always the same nurse (he may be the only one employed by the home health company though, it's a pretty small town). We go through Option Care as main provider and they contract with local home health, which is how we're able to have at a different location if we're on vacation or something like Crohnsinct says.
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