Crohn's Disease Forum » Parents of Kids with IBD » Delayed dosing and IBD Consuquences

12-21-2017, 11:45 AM   #1
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Join Date: Mar 2012
Location: California

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Delayed dosing and IBD Consuquences

kimmidwife - to your question a while back. If delayed dosing causes issues then it would follow that stopping the med would be just as bad if not worse.
Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Vit d 2000IU
Multi vitamin plus iron

Previously used - Prednisone, Prevacid, Enteral Nutrition, Methotrexate oral and injections, Folic Acid, Probiotics, Cortofoam

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohn's
Vit D 2000IU

Previously used, Exclusive Enteral Nutrition, Methotrexate (injections and oral), Folic Acid, Entocort,IBD-AID Diet
12-23-2017, 10:03 PM   #2
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Pilgrim's Avatar
Join Date: Jul 2014
Location: Ontario

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Thanks for posting this. I forgot H's injection on Monday and remembered 5 days later....first time in 3 years. But she's pretty well right now and she figured we should just skip it
Then I saw this post!
Good reminder that things can always go south.
So we did it late and I will sort out working it back to the schedule.
She and I actually had a good laugh about the fact we were both thinking, for a minute, "She doesn't need this anymore anyway."
Weird how good days can put us into denial even after 4 years with this stupid disease!
12-23-2017, 10:23 PM   #3
my little penguin
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Join Date: Apr 2012

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We had @delayed dosing ď for humira
Ds had surgery (non Crohns related)
Which required the humira dose be held
He was ok the first two weeks
So like you we thought it was going to all good
By week four flaring so tiny dose of pred was added while we waited
But week 6 disasterous flare for his joints and GI tract

We restarted humira
It didnít work
9 months after holding humira
He is still flaring and had to start a new biologic

Moral of the story do not hold biologics
Unles absolutely necessary
DS - -Crohn's -Stelara -mtx
12-24-2017, 01:40 AM   #4
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We, unfortunately, had the same experience for my girls. Humira was held for wisdom teeth surgery. They were both on weekly shots so they literally just missed 3 weeks of Humira and 2 weeks of MTX.

Both REALLY flared after the surgeries. One was so bad that we ended up needing to switch biologics for one of them. It was a giant pain :ybttyy
Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18

Crohn's Disease Forum » Parents of Kids with IBD » Delayed dosing and IBD Consuquences
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