Crohn's Disease Forum » Your Story » Hiding it for 10 years

12-30-2017, 09:30 AM   #1
Join Date: Dec 2017
Hiding it for 10 years

Hi everyone! My story is funny or not, depending on your attitude. I choose to laugh about it. I first started getting Crohn's symptoms in college when I was about 19. It was pretty mild and embarrassing, so I just used the one private bathroom in the dorm whenever I had an episode. I was able to keep it secret from just about everyone and got really good at excuses for why I would disappear frequently and for long periods of time. After college, I lived by myself so it wasn't an issue, but symptoms were getting progressively worse. I'd never been to a doctor about it.

I'm 29 now. This May, I started living with my boyfriend so suddenly someone was there to see where I spent so much time. He was shocked I hadn't seen a doctor, but I hadn't really noticed how bad things had gotten over the years and how it was interfering with my daily life and even my relationships. He made me see a doctor and within a month I was diagnosed. Yesterday I started medication and I can't wait to have my life back. I owe it all to him and can't believe I let myself be ruled by this disease for ten years. I'm so happy he's with me and that I'm going to get better.

When I was first diagnosed, I cried because I know there's no cure. But he pointed out that I was living with it already, and the only difference is that now we can do something about it. And it's perfect timing as the new year starts!
12-30-2017, 09:39 AM   #2
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ronroush7's Avatar
Join Date: Oct 2013
Location: vienna, Virginia

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Welcome. I am glad your boyfriend has been able to help you.
Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
12-30-2017, 04:47 PM   #3
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Pilgrim's Avatar
Join Date: Jul 2014
Location: Ontario

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I just am so happy you found a guy who cares so much. He helped you! May the relationship last long. Crummy diagnosis but beautiful story.
12-30-2017, 06:18 PM   #4
my little penguin
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Join Date: Apr 2012

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So glad you got help
And are starting meds !!!
It may take a while to find the right med combo for you
And any led in GI land takes a very long time
Think months not days
But once you find the right combo
You get a new normal
Good luck
DS - -Crohn's -Stelara -mtx
01-01-2018, 05:18 PM   #5
Join Date: Jan 2018
I had symptoms for over 10 years without a diagnosis, it isn't nice! Glad you have finally received your diagnosis and able to start treatment now!

Crohn's Disease Forum » Your Story » Hiding it for 10 years
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