Crohn's Disease Forum » Your Story » Medication for crohns with no symptoms

12-31-2017, 07:53 PM   #1
Join Date: Dec 2017
Medication for crohns with no symptoms

I was diagnosed 3 years ago with Crohns after a routine colonoscopy. I started messalamine got sick with pain, pumps on my legs and yucky feeling. started Azathaprine and got Sweets Syndrome violently ill. Going to see new GI doctor. Never had bloody diarrhea or pain. Healthy enough to donate kidney 13 years ago. not on any meds except vitamins. I don't want to go on any meds after going through all that for NO severe symptoms. Anyone else have any thoughts?
12-31-2017, 08:31 PM   #2
my little penguin
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Biologics remicade and humira
Aza can cause Sweets as a drug induced side effect
But Crohn’s disease without drugs can cause Sweets Syndrome as well
Ds got the lucky version of Sweets Syndrome due to Crohns not drugs

Biologics gave Ds little to no side effects
Methotrexate injections made him sick
But methotrexate pills did not make him sick
6-mp raised his liver enzymes

Remicade and humira has next to no side effects for ds
He is currently on Stelara/mtx after 7 years of biologics
He takes another biologic to control his Sweets Syndrome

Good luck
DS - -Crohn's -Stelara -mtx
12-31-2017, 11:18 PM   #3
Miss Underestimated
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Join Date: Mar 2011
Location: Norfolk, Virginia
The doctors want to stop the disease before it damages your intestines. They don't want to wait until you get symptoms, because by then it will have done permanent damage. You do not want permanent damage.
*Sick since 1987; managed on my own;
*diagnosed 2008 when I underwent emergency surgery;
*various meds and tests 2008-2012,
*Jan 2012-present, Humira. No symptoms, but scopes indicated disease.
*6MP for all of 2013.
*2014 &2015 complete mucosal healing.

**Staying on Humira for maintenance**

The statistics I see so far for my situation seem pretty good. There ARE long term statistics for the Anti-TNF drug treatments now. I'm here to make them longER.
01-01-2018, 01:54 PM   #4
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I would agree with the person above.
01-01-2018, 02:17 PM   #5
Miss Underestimated
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You meant to agree with what I said. People will get it.
01-02-2018, 08:23 AM   #6
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Location: New York

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No worries Ron! I've cleaned up the thread......

30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
01-02-2018, 11:19 AM   #7
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Location: Northwestern Ontario

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· Stoma
If you do not want to take the meds and I can relate to that. I would take a look at diet and lifestyle and the natural path methods that has provided relief for many. I found the heavy meds great for knocking down the initial flare. It took some time a few years, and with time I found that the meds were taking their toll on my body and my internal organs.
I now want nothing to do with these meds unless I have an uncontrollable flare which has not happened in over 10 years now.
I still flare, but they come back down on their own. I feel considerably better now than prior to my diagnosis 17 years ago. One thing that may play into my favor is that it would appear that as one gets older the disease moves slower. I had some horrific flares when I was younger.
01-02-2018, 11:36 AM   #8
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I agree with the above post.If I flare for too long,I will get a script for steroids to control it.I think after 16+ years since diagnosis I know my body well enough to know when I need help.I choose not take anything except Tramadol for pain,and Loperamide and Fybrogel when necessary.I know not to take any of these unless absolutely necccessary.But of course we're all different as IBD can be mild to life threatening.It's just about finding the right balance.

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