Crohn's Disease Forum » Your Story » Needing help

01-02-2018, 03:15 AM   #1
Join Date: Jan 2018
Needing help

I'm new to this whole internet thing but I really need some help on finding a way to help my 11 year old daughter ever since she was 2 she has been dealing with horrible stomach pain that they tell me is stomach migraines each year is getting harder and harder as it seems nothing helps to ease her pain as a mom it is the hardest most helpless feeling to watch and hear her in pain knowing I can't help the medicine the doctors give her give her little to no relief I'm hoping someone in this group maybe has the same condition as her or is in the same situation can offer some tips in helping her maybe a medication they found to be helpful that I can ask her doctor about or holistic remedy tried ginger tried peppermint so far
01-02-2018, 08:21 AM   #2
Lisa's Avatar
Join Date: Apr 2010
Location: New York

My Support Groups:
Welcome and sorry to hear your daughter is having a hard time.

Have you taken her to a GI doctor? What kinds of tests have been done so far?

What kinds of medicines have already been tried with any results good or bad?

30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
01-02-2018, 10:40 AM   #3
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ronroush7's Avatar
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
I am sorry your daughter is undergoing this. I am going to tag Clash, Maya 142, my little penguin, kimmidwife.
Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
01-02-2018, 12:57 PM   #4
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Maya142's Avatar
Hi and welcome!

Is your daughter seeing a GI? I think that would be the first step. Has she had any testing done? What has she been diagnosed with so far?
Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18

Crohn's Disease Forum » Your Story » Needing help
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