02-03-2018, 07:20 PM   #1
coolbeans
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CBD oil

Does anyone have any experience or research regarding CBD/cannabis oil for inflammation in Crohn's??
02-03-2018, 07:36 PM   #2
my little penguin
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Tagging Crohnsinct
Data shows pain improvement
No mucosal healing found
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02-03-2018, 10:19 PM   #3
Maya142
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I have done a little bit of research - I have mostly found that it works for nausea and pain but haven't seen any good research to suggest it gets inflammation under control and can lead to mucosal healing.

However, I've been looking at medical marijuana and not specifically CBD oil.
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Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
02-03-2018, 11:08 PM   #4
coolbeans
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A co worker of mine who is a bulldog when it comes to research has been looking into it for a while. She collected facts, videos and podcasts before she presented it to me today. I watched a video on a young man making a presentation & telling his story. Then I searched the forum & found his name on here also. He had pics of his before & after scopes. He still takes meds but not near what he was taking. However I also wonder if it works so good, why aren't all of us informed about it? I will keep reading & get back to you.
02-03-2018, 11:53 PM   #5
my little penguin
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A single person is an isolated incident
Not necessarily a study
Plus adult ibd is extremely different than kiddie ibd
They know the phenotypes are vastly different
How they behave
Outcomes
Meds that work
So even if you find an adult study it canít be applied to kids
Did Cincy recommend it ?
They are the tops in research
02-04-2018, 08:51 AM   #6
bethhall3434
 
Join Date: Jul 2017
Location: Forsyth, Montana
I asked out GI Specialist about it and she said she actually has a couple of patients who were trying it and sheíd let me know how the results were. She didnít seem to overly excited about it, but was definitely willing to work with and discuss it with us. Iíll keep you guys informed. We see her again in March.


02-04-2018, 03:08 PM   #7
crohnsinct
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Yep! I have researched it also for a few health issues and all I can come up with for IBD is symptom relief and no evidence of mucosal healing. As a matter of fact in one study I read the mucosa was worse after and the doctors are hypothesizing that because symptoms were relieved the patients weren't complaining and thus they were under treating disease. The adult world is much more liberal in their use and willing to try it because the stakes aren't as high with regard to under treated disease. With the kids there are growth, brain development, puberty etc issues. Plus their disease is more aggressive by nature.
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Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohn's
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Previously used, Exclusive Enteral Nutrition, Methotrexate (injections and oral), Folic Acid, Entocort,IBD-AID Diet
02-04-2018, 04:28 PM   #8
Maya142
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I wanted to add - if your daughter is in a lot of pain and that's why you are looking at it, then it's worth speaking to pain management. Some pain management doctors, even pediatric ones, do use medical marijuana.

We have held off on medical marijuana because there is evidence that it impacts brain development. But now that my daughter is older, we are looking into it much more seriously. But only for pain, not at all for disease control.
02-04-2018, 05:09 PM   #9
coolbeans
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she doesn't complain of pain often. We were reading about how it might help the inflammation but haven't delved too deeply yet. I would never want to do anything that would hinder her growth or development. Crohnsinct--that study makes sense--I tell my hubby that just b/c she looks ok on the outside doesn't mean that her insides are doing ok.
No dr has talked to us about it. We were planning on discussing it with our pharmacist who is also a close friend. Mainly the people I have heard that have used it are adults or older kids now that I think about it.
We just are not feeling that good about the ileostomy option right now--her dad and I have some reservations & are planning to read more about it.
Thanks for the input--I knew I could count on you all!!
02-04-2018, 08:38 PM   #10
Jabee
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My GI really likes marijuana, but mostly for pain. I use it in a 1:1 (high cbd no thc : high thc low cbd) ratio for migraines as well as my crohns pain. It really helps me. I am fortunate to live in a state where marijuana has been legalized so itís easy to buy, though.
02-05-2018, 09:55 AM   #11
xvee
 
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I tried it for 2 months. Cost more than $400. Had no effect on pain or any other Crohns symptoms. I think cbd needs thc to work.
02-20-2018, 05:02 PM   #12
CraftyRascall
 
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Does anyone have any experience or research regarding CBD/cannabis oil for inflammation in Crohn's??
I have recently been making my own CBD oil. I have a high CBD low THC (17 to 1) (lab tested) strain that I have been giving to my 25 yr old son who was Dx at age 14 w Ulcerative Colitis and Rhematoid Arthritis. He has been taking for about a month now and is still taking his medicines prescribed by the dr. I think its too soon for results but I too am curious if anyone out there has had any successes/problems to report with CBD/THC oils? Disclaimer: yes I live in legalized state, yes my son takes knowingly, and no, this oil does not get you high. Any responses greatly appreciated.
03-04-2018, 07:49 PM   #13
bethhall3434
 
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We see our GI Specialist tomorrow, Iíll ask her more about it. My mom is a nurse, she used to do peds but switched. Sheís going back to peds so she attended a class and part of the class discussed the strain of medical marijuana for pediatric Crohns patients and how the test trials have been very successful. Iíll get more info on it and let you know.


03-05-2018, 07:57 PM   #14
coolbeans
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I am eager to hear what they have to say. Thanks.
03-24-2018, 10:33 AM   #15
xenofluid
 
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I, myself, am taking cbd pills and oil and have just been approved for medical marijuana as well. Iím happy to offer any insight. For my own experience, Iíd have to say the oil worked extremely well. 750mg, one dropper under the tongue, and the next day I had no more blood in my stool! Itís fairly new for me, and I am on a very strong/high dose for both the oil and pills so I guess it depends on how much you take. I started with 750mg of oil, and 1000mg of pills. Be warned, although, because I did have an incident where I collapsed in the kitchen unable to breathe as I did not realize that it made me extremely dehydrated. Make sure to drink up to four bottles of water a day while on it, thatís what Iíve been doing and I havenít had any trouble with it since.
06-07-2018, 05:30 PM   #16
mrsT17
 
Join Date: Jun 2018
I, myself, am taking cbd pills and oil and have just been approved for medical marijuana as well. Iím happy to offer any insight. For my own experience, Iíd have to say the oil worked extremely well. 750mg, one dropper under the tongue, and the next day I had no more blood in my stool! Itís fairly new for me, and I am on a very strong/high dose for both the oil and pills so I guess it depends on how much you take. I started with 750mg of oil, and 1000mg of pills. Be warned, although, because I did have an incident where I collapsed in the kitchen unable to breathe as I did not realize that it made me extremely dehydrated. Make sure to drink up to four bottles of water a day while on it, thatís what Iíve been doing and I havenít had any trouble with it since.
We are looking for something for my husband to take to alleviate his symptoms. He is on 5 different medications, including one for pain with minimal results. We are not familiar with brands and companies who provide cbd oil either in pill or oil form. Would you mind saying what brand you take? If it's not allowed on here, you could email a link. I would be greatful.
Yesterday, 08:53 PM   #17
bethhall3434
 
Join Date: Jul 2017
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https://greenoilhealth.com/?c6cd1cca...dfa712750406f#

Hereís something that showed up in my email. Some info, but it looks more like an advertisement.


Yesterday, 08:54 PM   #18
bethhall3434
 
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https://greenoilhealth.com/?c6cd1cca...dfa712750406f#


Today, 02:33 AM   #19
chronieee
 
Join Date: Jun 2018
Location: Perth, Western Australia, Australia
link doesn't work bethhall3434
Today, 07:47 AM   #20
Maya142
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We tried it (a high CBD formulation). It was a bust for my daughter. It actually caused MORE diarrhea. And only helped with pain a little, so it was not worth it for her.
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