I've been on remicade for almost 14 and a half years, until recently... I've taken myself off and haven't had one since September of last year. My question is has anyone been on remicade for years and gotten off and had any kind of withdrawls from not having them anymore?
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Question about remicade
- Thread starter Hippie Chic
- Start date
- Location
- Southern British Columbia
I think Ron knows about that, tagging ronroush7
I was on remicade years ago. I took myself off because of how much it cost. That was a big mistake. I had a flare and ended up having a resection. Several months after the resection they tried to put me back on the Remicade. By that time, my body had built up resistance to it. I had a lesion in my scalp which couldn't be treated with antibiotics. It had to be removed surgically. Ask your doctor if you have been off it too long. If not, go back on it. If you can't go back on it, ask your doctor about another biologic. Let us know how you are.
I've been trying talk myself into getting back on it and getting my over due colonoscopy but I haven't completly got there yet...I guess I'm just tired. Have you had any intestines removed? And if so, did it help?
Ok, so i finally got off my high horse and made an appointment to get my infusion for next Tuesday. I'm keeping my fingers that it will dull some pain, if anything in my skin and joints.
My best to you.
- Location
- Southern British Columbia
You have my support Hippie Chic, I hope everything works out for the better. Let us know how things go with the infusion.