Crohn's Disease Forum » General IBD Discussion » Ileostomy Reversal Surgery


02-15-2018, 10:18 PM   #1
asm191
 
Join Date: Aug 2014
Ileostomy Reversal Surgery

Crohns since I was 10 yrs old. Currently taking Remicade.

I recently had Ileostomy reversal surgery after three months. The surgery itself was not painful. The post surgery has been lets say unpleasant. My surgeon said I would be going to the bathroom a lot after the surgery, but 12-15 times a day is crazy. Everything I have read about reversal surgeries this is on par for most people. Everybody is different for when their bowels decided to wake up. If anyone has had the same surgery, I would like to know your experiences and how long it took for your bowels to wake up.
02-15-2018, 11:49 PM   #2
Trysha
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Join Date: Aug 2009

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Hello asm191...
Sorry to hear of the problems you are enduring and hope you will soon feel better.
I have not had this type of surgery but with the bowel resections I have had it has always taken
a long time to get back to reasonable living...usually many months.
It can be a very gradual process.
Someone who has had the same surgery as you will be able to compare notes with you and
hopefully will be along to help you.
Hugs
Trysha
02-16-2018, 12:18 PM   #3
asm191
 
Join Date: Aug 2014
Thank you. I also have had 2 bowel resections. 5 years ago (8 inches) and one in November (5 inches). I was able to come back from them pretty quickly it was just the pain from surgery that go to me.
02-20-2018, 08:45 AM   #4
moogie
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Join Date: Jan 2011
Location: Boisbriand, Quebec
I've had three re connections in the last 10 years. Every single time I have to go to the bathroom 3x more than usual. I lost the ability to hold it in, so when I got reconnected I was camping in the bathroom.

We are all different but I would think that this is normal. After 1 month or so it will get back to normal.
__________________
I'm the Rat Man!!
DX - CD summer of 1987
Current Meds -
Remicaide
Getting Remicade every 8 weeks
Getting 5mg now. full dose. cost 5500$ )
Purinathol 75mg a day


3 resections
2 colostomy
One Ileostomy
Back to normal since May 2015
On Remicade Since April 2011 I am alive again!
02-20-2018, 11:45 AM   #5
tommy07
 
Join Date: Mar 2017
Location: Chester, United Kingdom
Hi, I had my reversal done on the 14/06/17 after i lost about 4 feet of combined colon and small intestine, on good days I'm going 3 times, possibly 2, but i would say I'm averaging 4 at the moment, usually formed in the morning and softer in the day depending on what I eat. My issue is I love chocolate etc and fatty foods, so that doesn't help.

Take care
02-20-2018, 10:13 PM   #6
Dyana
 
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Join Date: Feb 2017

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I had my reversal a couple of years ago. Today I go usually 3-5 times day and only very rarely formed. Things do get better with time.
02-23-2018, 09:25 PM   #7
blackey
 
Join Date: Feb 2018
Location: Aliso Viejo, California
I had a temporary for 12 years. It was ROUGH for the reversal. It took a long time for everything to start back up again. Eventually it did, but it took about 2 months for it to really get "normal"
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