Crohn's Disease Forum » Treatment » Stelara/Ustekinumab » Allergic to Stelara infusion


02-21-2018, 02:04 PM   #1
erinbeck
 
Join Date: Oct 2017
Location: Wadsworth, Illinois

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Allergic to Stelara infusion

My 14YO went for his last hope with Stelara and IMMEDIATELY had a reaction, could not breathe within 30 seconds, coughing so hard was breaking blood vessels, then got hives, a swollen face, lips, eye lids, hives, rash. Nurse stopped the drip and pushed fluids, something else and benadryl. He was better in 30 minutes. Just to inform that you can be allergic!

He is also allergic to peanuts, tree nuts, mold, ragweed, dogs, horses, and CD!!
02-21-2018, 02:49 PM   #2
my little penguin
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Join Date: Apr 2012

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Allergic kiddo here as well- food /pollens /drugs
Age 14 as well
Did they pre treat with iv solumedrol prior to starting Stelara infusion (not that it help
Now )?

Ds had 250 mg of iv solumedrol
Then Stelara infusion

So far so good

He has reacted to remicade infusions though

There is a parents group here

What drugs has your child tried ?
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04-26-2018, 02:47 PM   #3
erinbeck
 
Join Date: Oct 2017
Location: Wadsworth, Illinois

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as always the plot has thickened around my house! He ended up having surgery and 12" removed, had an unknown fistula and fixed that too. 5 weeks out he gets a bump in his stomach-i can post pics if interested. That bump grew, went to ER-told its a skin infection and give ANTIBIOTICS!!!. Next day in the ER again, within an hour the "skin infection" burst open. It was NOT a skin infection it was a fistula that made its way to the stich line from Feb's surgery.
Now the 14YO is on a 4-6 liquid diet of BOOST an ENSURE to quiet down his small instestine.

We tried to return to Remicade after the surgey and he reacted to that as well. blood work cam back he has antibodies to remicade. (previous med was humira adn devolped antibodies to that as well).

The diet is awful---going to search for the parent group.
04-26-2018, 02:50 PM   #4
erinbeck
 
Join Date: Oct 2017
Location: Wadsworth, Illinois

My Support Groups:
Allergic kiddo here as well- food /pollens /drugs
Age 14 as well
Did they pre treat with iv solumedrol prior to starting Stelara infusion (not that it help
Now )?

Ds had 250 mg of iv solumedrol
Then Stelara infusion

So far so good

He has reacted to remicade infusions though

There is a parents group here

What drugs has your child tried ?


sorry forgot to mention...He was not premedicated for Stelara, but was always for Remicade.
04-26-2018, 03:41 PM   #5
Maya142
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There is a LOT of info on Exclusive Enteral Nutrition - formula only - on the Parents' group/
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
04-26-2018, 10:46 PM   #6
newdiagnosis
Senior Member
 
Join Date: May 2017
Wow erinbeck. That sounds very serious. Sorry you both have to go through that. I hope your kid feels better.
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