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hi everyone---i'm kind of new to this...
hi-i'm andrea-i'm 43-and was diagnosed with mild crohn's on august 24 06. ..so-i guess i am still kind of processing this new information..
i have been to a gastroenerologist over the past months-(and once about 6 years ago-for frequent diarrhea)
i had a colonoscopy about 7 years ago because my dad had colon cancer-(he is ok now-had surgery) and the results just said i had evidence of scarring/ adhesions from a myomectomy (surgery to remove fibroids in uterus) a year before this.
for many years i thought my diarrhea was due to having had such large fibroids and then the surgery. my doctors also thought i might have ibs.
4 years ago i had shingles (just a small area of sores along the nerve from my left eye to my scalp)-and at the same time a virus that made my saliva glands swollen-as well as the gland under my left ear.
a few months ago i went to the gastro because of chronic heartburn-it seemed to be at its worst just before i made a stool or whatever--but-was/is bad all the time.
i went on prevaid-it helped for a short time-but then it started up again despite the med-as well as diarrhea becoming more frequent and often watery. my stools were almost always yellow. i didn't lose weight though-..i am pretty much average weight in general..)
i tried nexium-had diarrhea (it seemed ..due to taking it...but now i wonder..) i also tried prilosec(cheaper--but didn't work at all) as well as zantac (also didn't work)
then about 3 weeks ago (or something like that) the heartburn became "very" bad-(no nausea or vomiting--lucky in that way..)and the diarrhea was also even more frequent-and always watery. i had some ab pain-but-i almost have gotten to where i "ignored" that..but-i did have one episode -after going out to lunch one day-where i had what seemed like strong gas pain-but in the stomach area.
so-all this-i went to the gastro my gyn goes to. i was in not even 5 days later for a colonoscopy and an endoscope.
(colonoscopy prep is so horrible..i'm sure everyone here knows...i used the pills instead of the gallon drink--which was better-but-still-the worst prep ever..)
at any rate-i was then diagnosed with mild crohn's -(ileum)
he put me on pentasa (500mg 4 pills 2x day). i had a low grade fever for 3 days..and worried my body wasn't taking to the new med--but-yesterday and today-no fever.
today-in the morning and part of the afternoon-i was actually feeling a bit better--but-this evening (not sure if it was the baked potato with some butter)but-i now have semi-bad heartburn and have been having to go (stools) ..maybe 5 times since eating at about 630 or 7. (it is now 930) also-have anal burning (probably from going a lot today-especially this evening).
i also feel very tired and some ab discomfort.
since the pentasa-i have only had diarrhea one day..the rest-today included-well-formed and brown (man..this is all so gross!..sorry..gotta get the hang of this..!!) the stool has tiny yellow dots scattered through it each time--so-maybe thats from the pentasa..?
i think i will be starting the entocort tuesday. my dr mentioned that (but first see if i can "take" the pentasa. i was going to see if i could talk him out of the entocort..but now..i am beginning to think i may need it. i just feel crappy..so-guess it is the inflammation (?)--which needs to be dealt with...
so..thats my story..
sorry so long.
i'm just worried that since the burning is still there (tho-i was diagnosed to have mild gastritis as well-and am on aciphex for a month)-but..the frequent bowel movements and ab discomfort..make me think maybe i do need the entocort...
i realiaze i need to learn many things...especially about diet. i am not the healiest eater..i eat good stuff..but also eat junk..and i love icecream and pizza-the thought of....oh..well.
i am almost afraid to east now..after tonite-and the zillions of stools and burning...just after eating one potato...yeah..lots to learn..
oddly: ambien seems to help w the burning at night--takes the edge off--maybe that is because i am getting sleepy,,who knows?
does anyone here (esp those who have chronic bad heartburn)take pain relievers (besides tylenol) (like maybe codeine)?
i want to get to read many other stories here tomorrow-i think i am too nutty about it all right now however..and hopefully now can do some regular work.
that's the hardest thing right now--this feeling bad takes all my time-havent been working for a week now-and --i am losing it--well-not really-don't feel well enough to care really. right now-i guess all i can think about is this crohn's.....
anyway..i am glad to be here-and i hope to read/talk with others here who are going through this-at any stage--it is all crohn's....
thanks for reading such a long ramble
andrea
hi-i'm andrea-i'm 43-and was diagnosed with mild crohn's on august 24 06. ..so-i guess i am still kind of processing this new information..
i have been to a gastroenerologist over the past months-(and once about 6 years ago-for frequent diarrhea)
i had a colonoscopy about 7 years ago because my dad had colon cancer-(he is ok now-had surgery) and the results just said i had evidence of scarring/ adhesions from a myomectomy (surgery to remove fibroids in uterus) a year before this.
for many years i thought my diarrhea was due to having had such large fibroids and then the surgery. my doctors also thought i might have ibs.
4 years ago i had shingles (just a small area of sores along the nerve from my left eye to my scalp)-and at the same time a virus that made my saliva glands swollen-as well as the gland under my left ear.
a few months ago i went to the gastro because of chronic heartburn-it seemed to be at its worst just before i made a stool or whatever--but-was/is bad all the time.
i went on prevaid-it helped for a short time-but then it started up again despite the med-as well as diarrhea becoming more frequent and often watery. my stools were almost always yellow. i didn't lose weight though-..i am pretty much average weight in general..)
i tried nexium-had diarrhea (it seemed ..due to taking it...but now i wonder..) i also tried prilosec(cheaper--but didn't work at all) as well as zantac (also didn't work)
then about 3 weeks ago (or something like that) the heartburn became "very" bad-(no nausea or vomiting--lucky in that way..)and the diarrhea was also even more frequent-and always watery. i had some ab pain-but-i almost have gotten to where i "ignored" that..but-i did have one episode -after going out to lunch one day-where i had what seemed like strong gas pain-but in the stomach area.
so-all this-i went to the gastro my gyn goes to. i was in not even 5 days later for a colonoscopy and an endoscope.
(colonoscopy prep is so horrible..i'm sure everyone here knows...i used the pills instead of the gallon drink--which was better-but-still-the worst prep ever..)
at any rate-i was then diagnosed with mild crohn's -(ileum)
he put me on pentasa (500mg 4 pills 2x day). i had a low grade fever for 3 days..and worried my body wasn't taking to the new med--but-yesterday and today-no fever.
today-in the morning and part of the afternoon-i was actually feeling a bit better--but-this evening (not sure if it was the baked potato with some butter)but-i now have semi-bad heartburn and have been having to go (stools) ..maybe 5 times since eating at about 630 or 7. (it is now 930) also-have anal burning (probably from going a lot today-especially this evening).
i also feel very tired and some ab discomfort.
since the pentasa-i have only had diarrhea one day..the rest-today included-well-formed and brown (man..this is all so gross!..sorry..gotta get the hang of this..!!) the stool has tiny yellow dots scattered through it each time--so-maybe thats from the pentasa..?
i think i will be starting the entocort tuesday. my dr mentioned that (but first see if i can "take" the pentasa. i was going to see if i could talk him out of the entocort..but now..i am beginning to think i may need it. i just feel crappy..so-guess it is the inflammation (?)--which needs to be dealt with...
so..thats my story..
sorry so long.
i'm just worried that since the burning is still there (tho-i was diagnosed to have mild gastritis as well-and am on aciphex for a month)-but..the frequent bowel movements and ab discomfort..make me think maybe i do need the entocort...
i realiaze i need to learn many things...especially about diet. i am not the healiest eater..i eat good stuff..but also eat junk..and i love icecream and pizza-the thought of....oh..well.
i am almost afraid to east now..after tonite-and the zillions of stools and burning...just after eating one potato...yeah..lots to learn..
oddly: ambien seems to help w the burning at night--takes the edge off--maybe that is because i am getting sleepy,,who knows?
does anyone here (esp those who have chronic bad heartburn)take pain relievers (besides tylenol) (like maybe codeine)?
i want to get to read many other stories here tomorrow-i think i am too nutty about it all right now however..and hopefully now can do some regular work.
that's the hardest thing right now--this feeling bad takes all my time-havent been working for a week now-and --i am losing it--well-not really-don't feel well enough to care really. right now-i guess all i can think about is this crohn's.....
anyway..i am glad to be here-and i hope to read/talk with others here who are going through this-at any stage--it is all crohn's....
thanks for reading such a long ramble
andrea