Hi All:
Glad I found this forum. I've been looking for something like this and finally found you by googling crohn's disease blogs. I was diagnosed in 2001 with microscopic colitis. Took Asacol and went 5 years without a flare up. Then I started having a flare a year for a couple years, but the Asacol still seemed to do the trick. I never took a stronger dose than 6/day but wasn't put on it as maintenance either. Then ensued an 18 month period of flares that we finally realized Asacol was not able to control. In August 2009 my GP sent me to a GI who whipped into action. I got the Crohn's diagnosis in October 2009. Since then been on predinisone which kind of helped but immediately flared when I tapered off. Been on entocort for 3 months now; best I've felt in years. I had forgotten what it felt like to be 'normal'. Starting to taper off the entocort and adding back Asacol. Yesterday I started feeling 'on the edge' and today I have stomach pain and exhaustion. I haven't eaten much besides crackers and broth and I crashed out for about a 3 hour nap. I am so aggravated! I have signed up to walk in a Team Challenge half marathon in July and we had our first group training session yesterday. I've never done anything like this and I'm pretty excited and nervous about making it. If I am feeling crappy and can't train I'll never make 13.1 miles. Thanks for letting me gripe and I'm glad you all are here!
Glad I found this forum. I've been looking for something like this and finally found you by googling crohn's disease blogs. I was diagnosed in 2001 with microscopic colitis. Took Asacol and went 5 years without a flare up. Then I started having a flare a year for a couple years, but the Asacol still seemed to do the trick. I never took a stronger dose than 6/day but wasn't put on it as maintenance either. Then ensued an 18 month period of flares that we finally realized Asacol was not able to control. In August 2009 my GP sent me to a GI who whipped into action. I got the Crohn's diagnosis in October 2009. Since then been on predinisone which kind of helped but immediately flared when I tapered off. Been on entocort for 3 months now; best I've felt in years. I had forgotten what it felt like to be 'normal'. Starting to taper off the entocort and adding back Asacol. Yesterday I started feeling 'on the edge' and today I have stomach pain and exhaustion. I haven't eaten much besides crackers and broth and I crashed out for about a 3 hour nap. I am so aggravated! I have signed up to walk in a Team Challenge half marathon in July and we had our first group training session yesterday. I've never done anything like this and I'm pretty excited and nervous about making it. If I am feeling crappy and can't train I'll never make 13.1 miles. Thanks for letting me gripe and I'm glad you all are here!
